Haley Ng Fundraising for the IFOPA
Haley is a cheerful, creative and smart girl. She loves Elsa, panda and art in all of its forms. At the age of three, Haley started presenting with FOP symptoms. In July 2019, Haley was diagnosed with an exceedingly rare condition called fibrodysplasia ossificans progressiva, or FOP.
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FOP is one of the rarest, most disabling genetic conditions known to medicine. It causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
I’m fundraising to help the IFOPA fund research to find a cure while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide.
To donate, please fill out the form below. You will be sent an invoice with a link to make your donation via PayPal.